IETF Board Member Shares Expertise

IETF Medical Advisory Board Member, Theresa Zesiewicz, MD from Tampa, FL will be part of a panel sharing her expertise in the treatment of movement disorders at the International Association of Parkinsonism and Related Disorders (IAPRD) in Marrakech, Morocco May 24-25, 2013.

Abderrahmane Chahidi, DCFP, MRrici, Local Coordinator of the Congress and General Secretary of the MSAE  announced the First “Teaching Course in Movement Disorders” supported by the IAPRD.

The teaching program will consist of a panel of renowned international and national faculty in the treatment of movement disorders. International faculty includes Pr. Erik Ch Wolters (Amsterdam/ Netherlands), Pr. Daniel Truong (Fountain Valley, CA / USA), Pr. Theresa A. Zesiewicz (Tampa, FL / USA), Pr. Alberto Albanese (Milano/ Italy), and Pr. Tarek Yousry (London / UK ).

The program is designed to benefit young trainees in Neurology who aspire to specialize in Movement Disorders and update the practicing Neurologists, also neurosurgeons, radiologists and neuroscientists interested in movement disorders.

Where has my button been? Join in the fun!

ZoomButtonwithTitleThumbWe’re always looking for fresh ways to bring essential tremor into greater public consciousness. In this high-tech age, we have all sorts of digital solutions, but for our latest effort, we’ve gone decidedly old-school: a simple one-inch button that you pin on your lapel (or wherever you like!). The button features the same Archimedes spiral that is used by movement disorders neurologists to help diagnose essential tremor and that is also seen in the IETF logo.

Based on anecdotal evidence from those of us at the IETF headquarters who’ve worn them out and about, the handsome, bright-green spiral has proven to be a fine conversation starter. During March, for National Essential Tremor Awareness Month, we distributed more than 2,500 of these must-have accessories. They are free and we will be using them all year long to raise awareness about ET.

Join in the fun on our Facebook page at https://www.facebook.com/InternationalEssentialTremorFoundation where people will be sporting their spiral buttons and engaging in Where has my button been? activities. Several of my ET friends in Houston and I posted the first picture on Facebook to commemorate my button’s inaugural visit to Houston for the ET Education Seminar.

You may order your button through our webstore at http://www.essentialtremor.org/SiteResources/Modules/webstore/scripts/default.asp or by calling our toll-free number 888.387.3667. Order a few extra to share with friends, and expand the circle of button-wearers! Let’s see how many different and exotic places these stylish buttons (with their owners!) travel. So please, tell us–and show us–where has your button been?

If asked about the button, you can sound very worldly and educated:

▪ Tell them that the spiral is named after the Greek mathematician Archimedes (287-212 BC);

▪ Tell them that asking a patient to draw an Archimedes spiral is one of the indicators physicians have for diagnosing essential tremor;

▪ Tell them that for millions of people worldwide, the spiral represents hope for a better future;

▪ Ask them to join you in supporting efforts to raise awareness and funds to find better treatments and a cure.

 

 

Join Me!

Please join me as I facilitate the upcoming ET Education Seminars on April 20 in Omaha, NE and April 27 in Irvine, CA. More seminars are being scheduled each month so check our website www.essentialtremor.org frequently to see if the IETF will be in your area.

This is a free patient seminar where you will receive some great educational materials and hear some fabulous presentations. To register, go to http://www.essentialtremor.org/Seminars or call our office toll free at 888-387-3667 today!

 

Movement Disorders Neurologists Named to Best Doctors List

Congratulations to Drs. Maureen Leehey and Olga Klepitskaya who have been named two of the Best Doctors in America for 2013. This is the first time that Dr. Klepitskaya has earned the honor and the third time for Dr. Leehey. To learn more about the Best Doctors list go to www.bestdoctors.com and to obtain information about making an appointment, go to http://www.essentialtremor.org/siteresources/apps/physicians/

 

Downey CA ET Patient Seminar

Rancho Los Amigos National Rehab CtrCome join me in Downey, CA on Saturday, February 2, 2013 where I will be working with Drs. Hui and Liker to bring you another free seminar to learn more about the diagnosis process and treatment for essential tremor. The last event in the area was cancelled because registrations were too low, but we are hoping that the timing of this event will be better for everyone, so get registered today! I look forward to meeting so many of you.

Both physicians are extremely knowledgeable and you will definitely learn a lot. It’s also an opportunity for you to receive free educational materials and get a chance to ask questions. Please join me and others with ET for a half day of education and some free refreshments.  Please register today!

A confession

Well, it’s time for me to confess. For weeks, the IETF staff has continued to encourage me to write something for the blog. In response, I would tell them I didn’t have time or I would do it after I completed a specific project. But in reality, I continued to pursue what was familiar and what I was comfortable doing.

But that just hasn’t been the truth. Let me tell you why. I am new to this whole blogging thing. I am uncomfortable posting things online – who would want to read anything I had to say or anything I observed or what I was doing as executive director of this nonprofit? Everyone had their own lives and busy schedules and unless I had some earth shattering news to impart, there was no need for me to post anything. Besides, the IETF staff were so much more better at this – so much smarter and they liked doing it!

So here I am, a blog neophyte. Ashamed to admit it – but true! So I will begin my journey by posting weekly and sharing my ET world and experiences with you. Please don’t judge too harshly – remember the learning curve!

I will do my best and actually, I am sure you, the readers, will more than likely encourage me. So I have nothing to fear but the fear I impose upon myself. So here I go and I invite you to travel with me along this yellow brick road – who knows, I might just get good at this!

DBS Surgery Treats Violinist’s Tremor

NBC News – Los Angeles
Roger’s passion is the violin, but a neurological disorder called essential tremor (ET) makes it nearly impossible to play. To steady his hands, Roger underwent brain surgery for a procedure called deep brain stimulation that allowed him to play the violin while doctors fired signals into his brain to target the tremors.

To learn more about deep brain stimulation and other treatment for essential tremor, visit http://www.essentialtremor.org/Surgical-Treatments

Touch Screen Interaction and Essential Tremor

Recently, Rebecca posted on the topic of Accessibility and the Smart Phone and how “touch and swipe” technology on smart phones affects how people with essential tremor (ET) use such devices.

Today, I saw an article about a new developing technology by Qeexo called FingerSense and TapSense that may or may not make smart phones easier depending on the degree of ET severity. Researcher Chris Harrison invented software that expands interaction on smart phones from simple touch to also recognize different kinds of taps. FingerSense technology allows screens to know how the finger is being used for input: fingertip, knuckle or nail.

FingerSense Overview | Qeexo.com from Qeexo on Vimeo.

This refined level of touch on screens may present a challenge for people with ET, if this technology is incorporated into devices.

According to an article in Fast Company, Harrison’s team is in talks with Android handset manufacturers to integrate FingerSense into their phones. FingerSense requires an extra bit of hardware in order to work–an acoustic sensor that can recognize the unique vibration patterns that distinguish among fingertip, fingernail, and knuckle taps. Which means you can’t just download FingerSense from Google Play and magically give your Galaxy Nexus a next-generation user interface–yet.

“We are looking to partner with device makers to integrate this sensor, which our software needs,” Harrison explains.

FingerSense’s two-handed touch screen input gestures seem much more useful for tablets,where two-handed interaction seems likely and practical especially for people with ET.