National Essential Tremor Awareness Month may be over, but efforts to raise awareness don’t have to end on March 31. What if we didn’t just commit ourselves to raising awareness one month out of the year? What if we made a conscious effort to connect throughout the year with our communities to raise awareness about ET? Every day is a great day to increase awareness in your community! ET Awareness can be described as anything you do to help people understand what ET is, why the International Essential Tremor Foundation exists and how we can connect with others to fund more research to find better treatment options and a cure. Our efforts combined throughout the year to raise awareness could help so many people with ET live better lives, find treatment options that work for them and provide support for one another.
Raising awareness throughout the year can be a small or big project, the important part is that we are all keeping ET in the forefront of conversations and increasing the number of connections to the IETF mission. Raising awareness can be as simple as committing your office to hosting a “Jeans Day” each Friday with proceeds benefiting the IETF or distributing IETF materials to your local neurologist or physician. The possibilities are endless. Below are easy examples of how you can continue to raise awareness in your community beyond the month of March.
- Share our posts on Facebook, Twitter and Google + with friends.
- Post ET facts and hand out free IETF awareness posters around school, local businesses and your office to educate others about ET.
- Start a Support Group in your area.
- Computer Screen Savers: Add the IETF logo to your screen saver and send it to your friends and everyone in your family! Or simply create a text screen saver on your own computer that others will see when you’re away from your desk.
- Share your story and get an article in your local paper: Contact your local newspaper about media outreach opportunities. You can also include information about how people can contribute.
- Meet the Press: Does your company distribute a newsletter? Does your company have intra-office email? Take advantage of these…it’s a perfect way to get the word out about ET.
- Universities & Colleges: Contact your local schools and ask if you can put an advertisement in their school newsletter to create greater awareness. Some organizations may even invite you to make a short presentation.
- Write to your local politicians: You supported them; don’t you think they should support you?
Have you had a successful awareness event? Connect with us to share your story. Your ideas could inspire others to get involved in creating more awareness for ET. ET awareness can happen 365 days a year. Start today!
Raising awareness for essential tremor is the first step to increasing knowledge. Together with more knowledge, we can accelerate scientific research, advance treatment options and address the challenges of everyone affected by this life-altering condition.
This March, share that it is National Essential Tremor Month (NETA). There are so many simple ways to get involved to promote ET awareness.
Your contribution, no matter how big or small, will help fund programs that support and promote essential tremor awareness worldwide. Awareness builds knowledge. And together, knowledge can bring us one step closer to greater understanding, better treatment options, and ultimately, finding a cure. Help us build momentum worldwide!
When the fun and feasting of Thanksgiving is over, and two days of getting great shopping deals on Black Friday and Cyber Monday are behind you, there’s one more important day to remember, GivingTuesday. On December 2, we’re joining a national day of generosity, #GivingTuesday. It’s a day when you can make a big impact on essential tremor and on your friends, family and neighbors living with this life-altering condition.
With your help, we’ll raise funds to further research to find the cause of essential tremor that leads to treatments and a cure, increases awareness, and provides educational materials, tools, and support for healthcare providers, the public, and those affected by ET.
How can you be part of it? Here are a few simple ideas:
With your support, we can raise ET awareness for more support, better treatments, and ultimately, finding a cure.
Described as America’s next moonshot, the BRAIN (Brain Research through Advancing Innovative Neurotechnologies) Initiative is an NIH 12-year scientific plan focused on revolutionizing our understanding of the human brain. The IETF has joined major foundations, patient advocacy organizations, universities, and corporations, to align more than $240 million in research efforts to the initiative.
Since President Obama announced the Initiative in 2013, dozens of leading technology firms, academic institutions, scientists and other key contributors have made significant commitments to advancing brain research to better understand disorders such as Essential Tremor, Alzheimer’s and Parkinson’s diseases and more. Approximately $46 million in federal grants will support the research projects of over 100 investigators in 15 states and three countries. Stay up to date and spread the word on the BRAIN Initiative to uncover the mysteries of brain disorders.
You have an opportunity to help us make even more of a difference for raising ET awareness. GreatNonprofits – a review site like TripAdvisor – is honoring highly reviewed nonprofits with their 2014 Top-Rated List. The GreatNonprofits Top-Rated Awards program is a lot like a people’s choice awards where volunteers, donors and people served by the great work of each and every nonprofit can cast their vote in the form of a review to express their appreciation and potentially win nonprofits a spot on the List.
Winning nonprofits that get added to the GreatNonprofits 2014 Top-Rated List will get exposure from media and corporate foundations nationwide. Plus winners will be added to the GreatNonprofits #GivingTuesday and Holiday Giving Guide and included in City Pages and Releases for Top-Cities, gaining even greater awareness for essential tremor.
To qualify for the 2014 Top-Rated Awards, we need to have at least 10, new positive (4 or 5 star reviews) from different users until Oct. 31, 2014. Help us raise visibility for essential tremor by posting a review of your experience with the IETF. It’s easy and only takes 3 minutes!
Go here to get started.