Dr. Dalvi and the ET patients from the Tinley Park area were together again last Saturday at the Holiday Inn and Convention Center. We had a group of about 30 people and everyone learned a great deal with comments like, “I learned more in the last hour and I have in the 30 years I have had ET” and “definitely worth while”. But the conversation I had with a local police officer who had essential tremor was shocking. He told me a story of how his local neurologist couldn’t find test results to support his essential tremor so basically accused him of faking it and not wanting to go to work. For those that aren’t aware, there are no medical tests that exist to confirm the diagnosis of ET. It is diagnosed by medical history and neurological evaluation. To read more about ET go to our website.
Dr. Dalvi was joined by Dr. Peter Warnke, Associate Professor of Surgery and Neurology and Director of the Stereotactic and Functional Neurosurgery Program at the University of Chicago to answer questions about deep brain stimulation for essential tremor.
We also took the opportunity to show the audience a draft copy of the upcoming ET video developed to create ET Awareness. The attendees were in agreement the video is badly needed and gave praise at how well it was done. Check out the making of the video. Our “stars” had so much fun!
The final version should be live on our website sometime next week.
This week I am Phoenix bound. Can’t wait to see all the folks in Phoenix!