What a great time we had at the ET Seminar on Saturday, October 6 in Northbrook, Il. Dr. Dalvi was terrific and gave the attendees loads of information about the diagnosis process, treatment options, and updates on DaTscan.
DaTscan is a radioactive drug that is injected into your bloodstream to help take pictures of areas of your brain using a special camera. Your doctor may decide to do this imaging test using DaTscan contrast along with other medical tests to help decide if your movement difficulties are due to a parkinsonian syndrome (PS) or essential tremor.
Research updates were also provided on Focused Ultrasound as well as other studies being conducted across the country.
I stayed after the event and visited at length with several people. I net new support group members as well as spoke to members I have known for years. The group is led by Gladys Keats who has led the group for 15 years. She provides a place for so many to call “home” during the meetings. A place where no one is judged and everyone understands the impact that essential tremor has on each group member. Gladys is such a warm and engaging person and I have personally been privileged to have work with her over the years. Gladys told me she thinks about retiring as leader but said every time she mentions it, someone in the group tells her how much they need her so she agrees to stay on another year. Thank you Gladys for being such an inspiration to all of us!
I also want to recognize Howard Mirsky, my dear friend who has provided so much support as co-leader for many years as well as an ardent advocate for the IETF. Thank you Howard for all your hard work and for bringing important topics of conversation to the group.
I also met a special couple who has a 22 year old son, Danny, who was diagnosed with ET. They told me how much the seminar helped them understand ET and the information that was presented was priceless. Many others told me how appreciative they were and they wanted to hold another seminar next year. The results always remind me how many people are affected and how much these seminars help them. It makes all the hard work worthwhile.
The ET Seminar was filmed and will be available on the website, YouTube and on webcast sometime in November. Watch your email for a Tremor Gram announcement. Tremor Gram is our free online electronic newsletter so get signed up now.
Future ET Seminars between now and Thanksgiving will be held in the following cities, Tinley Park, Il; Fort Myers, FL; Tacoma/Seattle, WA; Dallas, TX and Downey, CA. The seminars are free so register now before it’s too late.