Contact the IETF

To reach the IETF, call toll-free 888.387.3667.
Fax 913.341.1296
Mailing Address:
PO Box 14005
Lenexa, KS 66285-4005
Physical Address:
11111 West 95th Street
Suite 260
Overland Park, KS 66214

9 thoughts on “Contact the IETF

  1. I am currently 73 and have had ET since college. It was a relatively mild inconvenience until the past 20 years, but has grown steadily worse. Now I have issues with writing, eating & drinking, and a vast myriad of other activities. I am scheduled for DBS surgery in the spring and hoping for a big improvement. In the meanwhile, I want to share some of the dozens of accommodations that keep life palatable for me.
    First and foremost, this is a BENIGN condition! It doesn’t hurt or kill unless you choose to let it! Learn to laugh at yourself. Don’t take offense. If someone seems interested, explain. Be thankful you aren’t dealing with something worse.
    Now, one of my favorite activities is cooking. Can get messy. So, I do my measurement and assembly in the sink, and I drape kitchen towels around work areas. Cleanup is a snap.
    Instead of using a spatula to flip, I cook in lightweight nonstick pans and learned to flip with the pan. (Practice with a slice of dry bread first – it really is fun, and works.) To stir, set pan or bowl in the sink and use a whisk instead of a spoon.
    I usually use footed bowls with pour spouts for sauces, soups, pancakes, etc.
    Some things I just can’t do, so I plan to ask for help. For example, when making jellies and jams, my husband does the final pour into jars and puts on lids.
    This is my first contribution. Let me know if you want more ideas. I am a retired teacher, and taught in spite of my ET getting worse the last 10 years of my career. In fact, it became a teaching tool.

  2. Has anyone had success with physical therapy for improving their tremor, such as the “Big and Loud” PT program which has had success with Parkinson’s disease?

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