Meet Me in St Louis!

Come spend some time with me and Dr. Pratap Chand Saturday morning, August 17, 2013 from 9:30 – 11:30 am at the St Louis Airport Marriott learning more about essential tremor. Go to www.essentialtremor.org/seminars to register. I look forward to meeting you and together learning about the medications, surgical options and research that is being done in ET.

Come and wear your button and take a picture with me so we can show people where our buttons have been and also to increase awareness around the St Louis area!

Milwaukee ET Event

We had a great time in Milwaukee with 80 people attending the extremely educational ET seminar. The presentations were very well done and provided a lot of information. Dr. Pahapill talked about his 20 year experience in the treatment of ET with deep brain stimulation and Dr. Blindauer reviewed the many medications that are often used and why some may not be successful in the treatment of ET.

For more information about the Froedtert and Medical College of Wisconsin Neurosciences Center go to: http://www.froedtert.com/SpecialtyAreas/ParkinsonsMovementDisorders/

 

 

 

 

Milwaukee Wisconsin here we come!

Hello Milwaukee and surrounding areas!

We will be facilitating another free ET education event/seminar on August 10 in Milwaukee. Come join us as we get together with the ET community to learn more about the diagnosis process and treatments available from Drs. Karen Blindauer and Peter Pahapill of the Medical College of Wisconsin. Follow this link www.essentialtremor.org/seminars  to register online or call toll-free at 888-387-3667. We look forward to seeing you there!

Where Has My Button Been?

Omaha 2 WHMBBHello Everyone!

We had so much fun at the Omaha Education Seminar and we all learned a lot from Drs. Torres-Russotto and Follett. We want to give both of them a huge thank you for sharing their time and expertise about ET. To learn more about the Movement Disorders Center at the University of Nebraska in Omaha go to http://www.unmc.edu/neurologicalsciences/movement_disorders.htm.Omaha Event WHMBB

Please join us in Irvine, CA for the upcoming event on Saturday, April 27. You can learn more at http://www.essentialtremor.org/Seminars. I would love to meet and share in the experience with you.

Mindfulness & ET

When medical or surgical therapy has not controlled all of the symptoms of essential tremor, some people have found that focused breathing and meditation are effective practices for calming the mind and body. In the cover story of our most recent Tremor Talk magazine, Dr. Monique Giroux writes that employing such mindfulness strategies can reduce the negative impact of stress and sharpen the mind’s potential for personal healing.

Dr. Giroux is co-founder of the Movement and Neuroperformance Center of Colorado in Englewood, Colo., and medical director of movement disorders for Swedish Medical Center.

“It is a way to stay in the present moment, engaging in life and living life as fully as you can,” she says. “Mindfulness can be a helpful tool to enhance the effect of medicine and surgery on tremor control. The next time your tremor feels ‘out of control,’ take a moment to reflect, and know that you have control in how you respond.”

Is mindfulness part of your regimen to regulate ET’s impact on your life? What has your personal experience been? Please share: inquiring minds want to know!

Assistive device query spurs terrific IETF Facebook thread

The IETF’s Facebook friends are quite active and talkative. Recently, we posed the question “What assistive device have you found to be the most helpful when dealing with your essential tremor?” In just a few hours, the post had accumulated more than 70 replies.

Responses went beyond what we might consider “assistive devices” in the tangible sense, mentioning medications, alternative medicine, diet, and other areas of interest for the ET community. Many of the postings underscore or expand on ideas presented in the coping tips section of the IETF website.

We’re just delighted to see so much dialogue in the ET community, with so many positive thoughts shared. So what insights and additions might you contribute to this conversation?

Join Me!

Please join me as I facilitate the upcoming ET Education Seminars on April 20 in Omaha, NE and April 27 in Irvine, CA. More seminars are being scheduled each month so check our website www.essentialtremor.org frequently to see if the IETF will be in your area.

This is a free patient seminar where you will receive some great educational materials and hear some fabulous presentations. To register, go to http://www.essentialtremor.org/Seminars or call our office toll free at 888-387-3667 today!

 

Kitchen Assistance

A few days ago, I received a call from an ET patient who has been having problems cutting herself when using sharp knives in the kitchen. At the time, I was at a loss for helpful suggestions. Since then, I did a bit of searching on our very own website! Under Assistive Devices, there is a link to Elder Store, http://www.elderstore.com/adaptive-eating-utensils. They have several serrated rocker knives listed which should provide some help in preparing meals. If you have any other helpful kitchen hints, please let us know.

Downey CA ET Patient Seminar

Rancho Los Amigos National Rehab CtrCome join me in Downey, CA on Saturday, February 2, 2013 where I will be working with Drs. Hui and Liker to bring you another free seminar to learn more about the diagnosis process and treatment for essential tremor. The last event in the area was cancelled because registrations were too low, but we are hoping that the timing of this event will be better for everyone, so get registered today! I look forward to meeting so many of you.

Both physicians are extremely knowledgeable and you will definitely learn a lot. It’s also an opportunity for you to receive free educational materials and get a chance to ask questions. Please join me and others with ET for a half day of education and some free refreshments.  Please register today!

The Mysteries of the Mind

Mind Body MedicineI watched a program on The Science Channel the other night: Through the Wormhole: Mysteries of the Subconscious. Part of the program discussed the work being done at The Benson-Henry Institute of Mind Body Medicine at Massachusetts General Hospital. With more than 35 years of research and clinical practice, Herbert Benson, MD and his colleagues at the Institute have proven the effectiveness of mind/body medicine in helping thousands of men and women reduce the stress that can cause or exacerbate their medical conditions. And as any ET patient will tell you, stress and anxiety do exacerbate essential tremor.

Mind/body medicine takes into account that physical health is influenced by thoughts, feelings, and behaviors, and conversely, thoughts, feelings, and behaviors can be influenced by physical symptoms. It teaches individuals how to take control of their lives, use their own power to reduce stress and other negative behaviors and thoughts, and thus maintain or regain health.

Dr. Benson found that there is a counter-mechanism to stress which he calls the “relaxation response.” The relaxation response is a physical state of deep rest that changes ?normal? physical and emotional responses to stress (e.g., decreases in heart rate, blood pressure, rate of breathing, and muscle tension). If practiced regularly, it can have lasting effects.

For more information on how to elicit the relaxation response in you, visit The Benson-Henry Institute of Mind Body Medicine website for the basics.

Do you meditate? What technique works for you? What other strategies or Coping Tips do you use to manage stress and anxiety?