School and Social Activities Were Nightmares for Me As My Peers Would Ask About My Shaking

March is National Essential Tremor Awareness Month and throughout the month we will be “raising the curtain on essential tremor” to help others understand what it is and the challenges people with essential tremor face. Everyone has a story to tell. Please share these stories with others.

By Loide Nampala

I am Loide Nampala. I am 23 years of age and from an African country Namibia. I would like to share my story for essential tremor awareness month to #RaiseTheCurtainOnET.

As a baby I had epilepsy. Then in my toddler years shaking began in my hands. As I got to pre primary school it affected my writing and social skills to the point where I tried to hide it. But I did this by making my body stiff so my peers always would ask questions wanting to know if I was sick or cold or nervous. I also developed a feeling of being scared of the unknown and always living in fear. As I was growing in years the tremors got worse in my primary and high school year, when it went to my legs and body. My parents took me to the hospital where I went through psychological treatment, which didn’t work.

School and social activities were nightmares for me as my peers would always ask me about my shaking, and sometimes laughed at me. I pretended to be sick and skipped school just to avoid being bullied. I did very bad in school and always repeated grades as I tended to avoid being bullied or asked questions. I avoided social activities even though I had the passion to take part in debate. It got to the point where I thought I was crazy and went to the mental unit to talk to a psychiatrist who then diagnosed me with generalized anxiety disorder. I was also referred to a neurologist for the shaking and was diagnosed with essential tremors and dystonia.

I just want to be at that point where I can live in the moment by accepting my condition because it limits me from daily activities and my goals.

I would like to ask to be part of a support group besides the one on Facebook so I can connect with people with the same condition as me. I would also like to take part in all activities and awareness programs.

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All of My Life I’ve Had People Ask Me Why I Shake

March is National Essential Tremor Awareness Month and throughout the month we will be shining a light on people who have essential tremor. Everyone has a story to tell. We hope that these stories will resonate with others, validating the everyday struggles people with ET feel physically and emotionally. As we shine a light on these individuals, we are shining a light on ET and raising awareness. Please share these stories with others.

By Rhonda,

I guess I’ve had essential tremor all my life. I remember as a child, my mom took me to the doctor and he would have me hold my arms straight out in front of me with my fingers spread apart. Then he would give me some type of injection. I never knew what it was and my mom never told me.

NETA month 2019 Logo

I never knew I had essential tremor until I was in my late 50s. I went to a neurologist for something else and that’s what he told me. The minute he walked into the room and took a look at me shaking, he knew.

As I’ve gotten older it has worsened. I’ve tried to work at a coffee shop and couldn’t carry a cup of coffee to a customer. All of my life I’ve had people ask me why I shake. Am I scared? I’ve even had people  laugh at me because I was shaking. Some people have said I’m on drugs because I shake, or am an alcoholic. I’m so tired of the embarrassment. I just want this nightmare to end.

I tried a medication called propranolol. But I was on blood pressure medication and other medication at the time and went into the hospital because I was sleepy and tired. That told me I was being over medicated. So I got off everything but the blood pressure medicine.

If I’m ever blessed with something that helps me with my tremors, I will be sure to share it.

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