Study seeks DBS advancement

DBSDeep Brain Stimulation (DBS) has been around for many years and is one of the most common surgical options for the treatment of essential tremor.  Recently, a new system has been developed that takes DBS to the next level. The new device actually senses and records the brain signals that cause the symptoms of essential tremor and other movement disorders, allowing researchers the opportunity to see exactly what signals are related to abnormal movements.

Although approved for use in the European Union in January, Medtronic’s Activa PC+S system has not been approved by the Food and Drug Administration (FDA) for use in the United States. However, the new device is currently cleared for study in the U.S. and two patients with advanced Parkinson’s disease have already undergone the surgical implantation of the new device.

The hope is that in the near future, this technology will develop to a level where the device itself will monitor the patient’s brain activity and automatically adjust therapy based on the individual’s needs– just as a pacemaker does for heart patients today. This would be a big advancement in DBS if this technology can be developed. Instead of DBS sending a constant, unchanging signal to cancel out tremor symptoms, the device itself would automatically make adjustments and changes to offer patients optimum benefit.

Read more about this study here or learn more about surgical options for essential tremor in this webinar.

Meet Me in St Louis!

Come spend some time with me and Dr. Pratap Chand Saturday morning, August 17, 2013 from 9:30 – 11:30 am at the St Louis Airport Marriott learning more about essential tremor. Go to www.essentialtremor.org/seminars to register. I look forward to meeting you and together learning about the medications, surgical options and research that is being done in ET.

Come and wear your button and take a picture with me so we can show people where our buttons have been and also to increase awareness around the St Louis area!

Milwaukee ET Event

We had a great time in Milwaukee with 80 people attending the extremely educational ET seminar. The presentations were very well done and provided a lot of information. Dr. Pahapill talked about his 20 year experience in the treatment of ET with deep brain stimulation and Dr. Blindauer reviewed the many medications that are often used and why some may not be successful in the treatment of ET.

For more information about the Froedtert and Medical College of Wisconsin Neurosciences Center go to: http://www.froedtert.com/SpecialtyAreas/ParkinsonsMovementDisorders/

 

 

 

 

July DC Report

In July, Tom Bruderle, IETF Legislative Liaison, and Catherine Rice, IETF Executive Director participated in the July 22 NIH BRAIN Initiative Webinar designed to engage the patient advocacy community in the research pursuant to President Obama’s commitment earlier this year. There were about 100 people on the call with a second event anticipated sometime in the fall. Currently, NIH is developing specific scientific goals for the Initiative and has a website up and running at http://www.nih.gov/science/brain/index.htm where you can follow the progress.

Not much has occurred this month in the House and Senate. Tom continues to increase awareness and educate our congressional representatives about essential tremor. If you have a congressional representative or senator in DC that you would like for Tom to visit, please send us an email at info@essentialtremor.org.

 

Milwaukee Wisconsin here we come!

Hello Milwaukee and surrounding areas!

We will be facilitating another free ET education event/seminar on August 10 in Milwaukee. Come join us as we get together with the ET community to learn more about the diagnosis process and treatments available from Drs. Karen Blindauer and Peter Pahapill of the Medical College of Wisconsin. Follow this link www.essentialtremor.org/seminars  to register online or call toll-free at 888-387-3667. We look forward to seeing you there!

Where Has My Button Been?

Omaha 2 WHMBBHello Everyone!

We had so much fun at the Omaha Education Seminar and we all learned a lot from Drs. Torres-Russotto and Follett. We want to give both of them a huge thank you for sharing their time and expertise about ET. To learn more about the Movement Disorders Center at the University of Nebraska in Omaha go to http://www.unmc.edu/neurologicalsciences/movement_disorders.htm.Omaha Event WHMBB

Please join us in Irvine, CA for the upcoming event on Saturday, April 27. You can learn more at http://www.essentialtremor.org/Seminars. I would love to meet and share in the experience with you.

IETF Board Member Shares Expertise

IETF Medical Advisory Board Member, Theresa Zesiewicz, MD from Tampa, FL will be part of a panel sharing her expertise in the treatment of movement disorders at the International Association of Parkinsonism and Related Disorders (IAPRD) in Marrakech, Morocco May 24-25, 2013.

Abderrahmane Chahidi, DCFP, MRrici, Local Coordinator of the Congress and General Secretary of the MSAE  announced the First “Teaching Course in Movement Disorders” supported by the IAPRD.

The teaching program will consist of a panel of renowned international and national faculty in the treatment of movement disorders. International faculty includes Pr. Erik Ch Wolters (Amsterdam/ Netherlands), Pr. Daniel Truong (Fountain Valley, CA / USA), Pr. Theresa A. Zesiewicz (Tampa, FL / USA), Pr. Alberto Albanese (Milano/ Italy), and Pr. Tarek Yousry (London / UK ).

The program is designed to benefit young trainees in Neurology who aspire to specialize in Movement Disorders and update the practicing Neurologists, also neurosurgeons, radiologists and neuroscientists interested in movement disorders.

Join Me!

Please join me as I facilitate the upcoming ET Education Seminars on April 20 in Omaha, NE and April 27 in Irvine, CA. More seminars are being scheduled each month so check our website www.essentialtremor.org frequently to see if the IETF will be in your area.

This is a free patient seminar where you will receive some great educational materials and hear some fabulous presentations. To register, go to http://www.essentialtremor.org/Seminars or call our office toll free at 888-387-3667 today!

 

Movement Disorders Neurologists Named to Best Doctors List

Congratulations to Drs. Maureen Leehey and Olga Klepitskaya who have been named two of the Best Doctors in America for 2013. This is the first time that Dr. Klepitskaya has earned the honor and the third time for Dr. Leehey. To learn more about the Best Doctors list go to www.bestdoctors.com and to obtain information about making an appointment, go to http://www.essentialtremor.org/siteresources/apps/physicians/

 

Downey CA ET Patient Seminar

Rancho Los Amigos National Rehab CtrCome join me in Downey, CA on Saturday, February 2, 2013 where I will be working with Drs. Hui and Liker to bring you another free seminar to learn more about the diagnosis process and treatment for essential tremor. The last event in the area was cancelled because registrations were too low, but we are hoping that the timing of this event will be better for everyone, so get registered today! I look forward to meeting so many of you.

Both physicians are extremely knowledgeable and you will definitely learn a lot. It’s also an opportunity for you to receive free educational materials and get a chance to ask questions. Please join me and others with ET for a half day of education and some free refreshments.  Please register today!